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- Myeloma Topics
- Thriving & Surviving
I was diagnosed 2 September2011 Labor Day Weekend. Had only the B in CRAB. While I am ISS-one and DS-3 my cytogenetic profile classifies me as HighRisk MM. I have deletion 1p & RB1, gain of 1q, as well as both trisomy and tetrasomy 7.
Despite this genomic profile I had NO symptoms& the bone marrow biopsy (10% plasma cells) report said 'suspicious' for MM needs clinical verification. Only my skull x-ray was indicative of myeloma. It was hallmark skull image of MM...sigh... While only 10% PC's 80% were myeloma..
On 27Oct 2011, I began care at NIH in a carfilzomib clinical trial. Eight cycles of Carfilzomib (36mg/m2) with lenalidamide 25mg and lo-dose dex, followed by 1 yr of maintenance with Len 10mg. In March 2012, MFC after 5 cycles, indicated sCR & I'm hoping to sustain it. . Hope springs eternal! Going to feel blessed & keep striving to survive, until then.
It's Jan 2015 and I am still sustaining my sCR!!! wooHoo!!!
My spouse and I are University of Michigan Ann Arbor alum and we have two sons.
I am an avid reader. Books I recently enjoyed; TwelveTribes of Hattie, GirlGone, Roses and the Century Triology.
Read more about me & my MM journey here: